I haven't blogged about this in a while but the time has come that I need to let off a little steam and say a little pray for Kiya.
During routine blood work once first home from Ethiopia, Kiya tested positive for Hepatitis C antibodies. She then tested negative for Hepatitis C. What does that mean? It means that she was exposed to Hep C likely from her mother but she at that time did not actually have Hep C.
Well it has been 3 months and she needed to be retested. We learned today, that she is still testing positive for Hep C antibodies. We are going in for additional blood work to test for Hep C the disease.
There is a less than 5% chance that she will ever get Hepatitis C but as long as she is testing positive for the antibodies we have to stay on top of it. The doctor had hoped that when she was a year she would test negative for the antibodies but she didn't. So we are going to have to repeat all of these blood tests again in 3 months.
We have done our homework and are prepared for whatever may come. We are of course saying prayers that she continues to test negative for the actual disease and that in 3 months she won't still be testing positive for the antibodies.
The worst part is the actual blood draw. It is so tough on Kiya. She doesn't have great veins so it is usually torture for her. Last time they had to prick her finger to get the blood. They come near her with the rubber tie for her arm and she starts screaming. She hates it and I hate it as her mother.
Wish us both luck.
7 comments:
Good golly Cathy. I'll be continuously thinking of you guys (like I don't think of K all the time anyway!)
I have friends who have returned home w/ Hep A and Hep B. Worst case scenerio you can handle. You can. She can. You have such a strong family, I have no doubt you guys could handle anything together.
That said...I hope you don't have to.
Thinking of you guys.
Hugs and prayer for angels to watch over all of you- today and forever.
We said in our application that we are open to all forms of Hepatitis. So we did a lot of looking at them online. You can do it. Nothing else I can say. You can do it if worst case scenario and we'll all be here in the blog world for you. :) Amanda
I will be praying for your sweetpea!
Praying for her! It even makes my mommy heart ache to picture her screaming and getting poked by those needles. No matter what, you guys will work it out! Hugs!
Theresa
I will keep her in my prayers. I dont know if you remember this, but when we were presented with Abiye's referral, we were told that he needed a family who would "take a leap of faith". We were told he had a good chance of having sickle cell disease, and if it wasnt that, we were looking at some very rare form of blood disease. they couldnt do anymore tests til we got him home. We prayed and prayed. We took him to the specialist, they did every blood test possible, and yes, the blood drawing is THE WORST ever! We were prepared to take on whatever this was. The specialist even said she knew for certain he at least had some form of rare blood disease. We received the results.
Nothing.
He was perfectly healthy.
A miracle.
We actually had to ask the doctor over and over to be sure we heard right.
Not saying that this happens for everyone.
Just wanted to give you some encouragment.
And no matter what - you are amazing parents, and you will take this head on - whatever the outcome is.
Hugs to you.
Post a Comment