Been awhile

I have been having a hard time finding the time to blog. Something that I love to do....such is the life of a busy stay at home mom.

So where are we, well lets just say it's complicated.

Katie has been home 2 months now. She is such a snugly and opinionated child. She has a lot to say and is learning new words it seems daily. She has some aggression in her and if she doesn't get what she wants or if big sis is bugging her she will lash out and hit you. Not fun and something we are working on. She also tends to scream at you...especially if you dare say "Katie come here". sigh....on the plus side I am becoming quite creative in the words I choose to use. Don't get me wrong, she really is a wonderful little girl and very very smart, she like big sis is full of personality and attitude and that can be challenging at times.

Kiya is cast free this week. She is doing okay with it. Her balance is out of whack and she is moving with less confidence then she normally does. This was very apparent during Trick or Treating. I hate this week. I hate scoliosis. I hate what I fear we are going to hear come Monday after her fabulous black and pink cast #9 goes on. I keep hearing stuck and no change over and over in my head. I can see it. I see her shoulder dip. I see her curve. To say that I am beyond frustrated and heart broken is an understatement.

I wish there was a guarantee or answer that what we are doing casting will work but sadly there is not. I fear we will be at a crossroad soon and need to make some difficult decisions. It is tough. So tough and I honestly can say right now I don't know what to do. Part of me says keep on casting because we can do that. We know cast life. The other part of me says casts aren't doing it, she is very likely going to have to have surgery so why continue with casts. Give her a brace. Let her gain some strength and wait it out in a brace until she is older. Brace life brings a whole new set of challenges but is it what is best...I am torn.

The upside to all of this is Kiya. She is truly one remarkable kid. 12 weeks ago she had a hard time walking up a flight of stairs in her cast without help. She has worked hard everyday of these last twelve weeks to not only walk up and down the stairs by herself but even alternating feet. And now that she is cast free, she can still walk those same flights of stairs without help and alternating her feet. The first few days cast free she wanted help and said I can't. We encouraged and supported but told her to try and do it herself. She did it and she was so proud of herself. Kiya gives me hope that no matter where this crazy road will take us, she will be okay. She is a fighter.

So there you have it nothing glamorous but it is our reality right now. I am tired a lot and in need of a break. Luckily there is a light at the end of the tunnel. Moms weekend! I cannot wait for the 2 days I get to spend with some of the best people I know. No hospitals, no siblings fighting, no mealtime stress, just two days of girl time and a Twilight movie.

I promise my next post will have pictures from Halloween. My Sleeping Beauty and her lady bug side kick had a blast.