This post has been brewing in my head for a few days now. I just needed a few days to sort it out and well celebrate the good news of our soon to be baby girl.
Kiya got cast #4 this past Tuesday. It was a VERY long and draining day. Kiya as always was such a trooper. In my heart, I was hoping for just a little even a smidgen of correction in her curve. That was not to be this time. Her stubborn little curve gained 4 degrees. So we started the day at 66 degrees and once again our doc worked his magic and she is holding at 15 degrees in cast. Amazing. Her flexibility is what keeps me going.
I was devastated by the news that her curve got worse. It was a tough blow. However, not only did I have my wonderful husband, I had some dear friends there to help pick me up. And Linda, our nurse to insist repeatedly that all is fine and that I shouldn't be worried. I am so grateful that Catie, Tracy,Sarah and Rachel were there to pick me up after the news of her curve. I am not sure what I would do without these amazing women that I am so honored to call my friends. Catie has been down this road with her iron man and her hope and his progress is such an inspiration to me. Sarah just gets it and well Rachel is so sweet and dealing with her own cast day stuff and yet there she was to be a support.
So after the shock of that news and a nice breakfast chat with Tracy, it was time to get to Miss Kiya. She is usually pretty grumpy post anesthesia but once again my amazing girl just rolled with it. She was a little out of it and a little mad but once she got her crackers and some juice she was much better. I can't thank Tracy enough. She was right there by our sides encouraging Kiya to eat and drink and getting her more crackers. I just met the woman in person that day and wow. So grateful to her for being there when she didn't have to be and for her care and concern for me and for Kiya. I am lucky to have met her.
Kiya was sporting her new pink cast and was ready to get to the tape. She was even helping the nurses tape her cast. She sat so still and was just amazing. I was so proud of her. All was well until it was time to trim the shoulder straps. From there the day was a blur. Kiya was hysterical. I was a mess and the new latex free tape was TERRIBLE. It just became too much at one point.
I hate scoliosis and I hate this cast. There is extra fiber glass, crappy tape and it is so tight. I will be shocked if we don't have sores under her arms.
I hate that sweet Kiya has to deal with this and yet deal with it is what she does. She is truly amazing. She was up and running around that afternoon. She even went to preschool on Wednesday. She asked to go. She had a great time. She went accident free in her new big girl underwear. We had our first post cast laundry room bath and she was totally fine. She rarely if ever complains. She is such a superstar.
So where do we go from here....we keep on casting. That is what the doc says and that is what we will do. So here is to the next 11 weeks.
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