Back to the beginning

So yesterday, Kiya got cast #2. She did great as always. Such a trooper. It was a VERY long day that took WAY too long to do everything. At one point I was tempted to just grab the tape and padding and just finish the job myself but whatever. All in all I love the staff at Shriner's Chicago minus maybe the clueless anesthesiologist and the new nurse who was I believe the source of the slow down.

Miss Kiya is now sporting a brand new very pink cast. She picked the color herself. I knew she would pick pink. She only recognizes a few colors accurately pink being one of them and her latest love so I knew as soon as she saw it that is what she would pick. My girly girl didn't let me down.

She is adjusting well. A little sore and a little clumsy but overall doing great. She is walking pretty well. She is starting to bend and pick things up again. She will only sit for short periods of time without a wall or pillow behind her but she did that last time too so that is to be expected. The thing that shocked me is last night she slept on her side on and off. That took a month plus in her last cast.

The best part of the day was being there with 2 of our Lucky Cast families. That makes the long casting day just a little easier when you can share it with your extended family. There were definitely some people we missed and wished could have been there but we know they were there with us in spirit and cheering us on through facebook.

I was kind of prepared for Kiya's xray numbers and kind of not. When she started this journey back in September she was at a 52 degree curve in her spine which the doctor was able to hold at 15 degrees in her cast. Well yesterday Kiya's out of cast xray came back showing a 60 + degree curve so worse than before. Two things happened here. One the xray wasn't perfect, Kiya's shoulders weren't squared up and the second is that Kiya was out of cast for just over 2 months. The doctor worked his magic again and was able to hold Kiya's curve to 15 degrees in cast again. So I am holding on to that. Kiya is pretty flexible which should help. He is still hopeful that we can get complete correction if we stay the course so we are in this for the long haul.

I feel like we are starting all over and are in cast #1 really. Not going to let it get me down though. We have amazing friends to walk with us on this journey and pick us up when we fall or need the extra encouragement and that makes the world of difference. I cried 1 time yesterday and that was when they rolled Kiya back to surgery. Last cast, I couldn't stop crying and had to hold on to nurse Gwen for support and a walk before I could even get near Kiya post surgery. Why was it different this time even with the unsettling starting number? Well, we knew what to expect with the angry screaming toddler post anesthesia. We knew what she would look like with the cast on so there wasn't the shock factor. We knew that our friends were right there with us and that we can do this together.

We are all readjusting to our new normal and breathing a sigh of relief. We have 12 weeks to not worry about Kiya's back getting worse. It is a nice feeling. These last 2 months of looking to see if her back was crooked. Watching it get crooked was tough.

For all the numbers, check Kiya's Kare Korner.