I will start with the easy stuff.
Shoes:
We took Kiya to have her feet measured today. Since she tends to roll inwards on her ankles we wanted to get her some better shoes. She was wearing solely stride rite shoes but we wanted a more higher top shoe. Turns out that Miss Kiya has been wearing shoes that are too small. She went into the store wearing 4 1/2's and she left with one pair of size 5 1/2 sandals and a high top walker that is size 6. We had no clue that she had out grown her shoes. They appeared to still fit but so didn't. So these shoes will get us hopefully to fall and then it will be new shoes again. This new mommy learned a lot today about the world of children's shoes and feet. Anyone need girl shoes size 4 and 5? I have perfectly new shoes that Miss Kiya cannot wear. Let me know.
Carseats:
On a recent dinner outing with the in-laws we were putting Kiya in their carseat and low and behold my tall little one is too tall to sit rear facing in their carseat. She needs to be moved up to the top level for the shoulder straps which per the manufacturer means she has to go forward. So this weekend all carseats will be turned around. A whole new car ride is in the future for Kiya. We had hoped to wait until she was two but we figure once one of her three carseats needs to go forward we might as well turn the others around too. I know it is safer to keep her rear facing but we have reached the point where that just isn't possible anymore.
Ok, here is the tough part of this post.
MRI
Kiya met with the Peds Ortho doctor yesterday. Not surprisingly she has scoliosis which by definition is a curvature of the spine. Currently her curve is in the moderate range at 36%. That said the doctor cannot and would not say that is all that is going on unless we get at MRI of Kiya's entire spine. The purpose is to rule out spinal cysts and a variety of other horribly scary sounding things that I can't remember the name of.
Kiya will have her MRI next Tuesday under sedation. She needs to report to the hospital at 8:15am and her actual scan will begin at 9:45. We were told it would take 2-2.5 hours to complete the scan. Then Kiya will need to eat and drink something before she will be released. We likely won't be home until close to 1pm.
Needless to say this Mama is secretly freaking out. I am doing much better today but yesterday was rough. My worst case scenario going into the appointment was a back brace and possible leg cast for her ankle/foot issues. Never in my wildest dreams did I think we would be headed to the hospital for an MRI to rule out stuff. It was a tough moment. I hate the idea of Kiya being sedated. I am holding on to hope that there is an 80% chance that the MRI will come back negative. We won't know the results for up to a week after the scan. That is going to be a LONG week.
No matter what we will get through. Kiya is a fighter and we will deal with whatever the MRI shows. In the meantime we are going to enjoy our sassy little girl and her new shoes and hopefully some cool fireworks this weekend.
If you are the praying type we would appreciate prayers for a negative MRI. If not we will take fingers crossed, good vibes, positive mojo, anything really. This parenting stuff is tough on a regular basis but when you hit these speed bumps it gets a little tougher.
6 comments:
I will be keeping your family in my prayers! Miss Kiya is one tough cookie, and she will do great. But us Momma's tend to worry about everything, so worry on Momma!
One day at a time.... been there...
Dear Lord... give this family peace... and help them to endure and to keep their eyes on you during this week. Give them extra love and attention... and strength...
Amen
Praying for Kiya, that everything will turn out okay no matter what. And praying that you and hubby will have a sense of calm while you wait for all of this to play out. Just waiting for a medical procedure like that can be much harder than just doing the medical procedure. So keep yourselves busy and doing fun things this weekend...and have some wine. Super huge bear hug to you Cathy!
Theresa
I just went through the whole sedated MRI with Annie. What they are really looking for is to find out if there any nerves being pinched due to the curve. At Children's they were wonderful in making sure that as soon as we could be with her we were. They also gave her a med that made her forget the whole leaving us thing. So from her perspective she was with us in one room blinked and we were altogether in another room and she was feeling a little crappy. I really think the part she hated th most was the pulse ox meter. It had her seriously pissed off.
Thinking of all of you.
oh goodness. I have been lazy with blog reading and obviously missed a lot. Well, I have met Miss Kiya in person and know if anyone get rise about any diagnosis she's given, it's her. I have no doubt that Miss Kiya will be blowing the doctors (and all of us) away with abilities and healing.
big hugs.
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